For the third year in a row, Briarcrest student Ella Bork joined the "Fight for a Better Life," an annual fundraising campaign hosted by the Alagille Syndrome Alliance. In her three years hosting the bake sale, Ella has baked over 1,000 treats with fall-inspired flavors like pumpkin, cinnamon, ginger, caramel, and apple. Through pre-orders and day-of sales, Ella's Treats for a Cause has raised over $3,100 to help fund programs for Alagille Syndrome families around the world. "Alagille Syndrome is a rare disease that hurts your liver, your heart, your kidneys, your eyes, and your bones," says Ella.
"Since we started the bake sale three years ago, a company has developed a new medicine to help people with the horrible itch from Alagille Syndrome. This is really great because it's an itch that does not get better when you scratch. But Alagille Syndrome patients still hurt and have to have liver and heart transplants so we want to help them with more medicine and a cure."
Alagille Syndrome (ALGS) is a rare disease that affects multiple organs and systems in the body. Categorized as a cholestatic liver disease, many ALGS warriors need a liver transplant for survival. When there is heavy cardiac involvement, a heart transplant may also be needed. At this time, there is no cure. The Alagille Syndrome Alliance works to improve the life of anyone affected by Alagille Syndrome.
Ella understands how challenging rare disease can be. "There is no cure for most rare diseases. Those people deserve a better life, and I just want to help them."
Thank you, Ella, for using your skills to make a difference!